nice genes is a brand that advocates science and rare diseases. Our goal is to create a community that fosters science and bring awareness for rare diseases.

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HOW WE DONATE

We commit at least 10% of our profits to organizations that we are involved with. Total donated: $1,872

WHO WE DONATE

NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

InvisiYouth Charity_White background log

The Ehlers-Danlos Society is a global community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions. The Ehlers-Danlos Society is proudly working to provide global learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population: Giving HOPE to all those whose lives are affected by EDS and HSD.

InvisiYouth Charity is an organization that helps teens and young adults around the world with various chronic illnesses and disabilities gain the right lifestyle programs, empowerment tools and fun resources to keep living life with any health struggles. With InvisiYouth, older youth are motivated in all the non-medical aspects of life with any illness, visible or invisible, and have access to resources and platforms so they can have joy, success, and thrive in their diverse lives.

Beacon is a UK-based non-profit organisation that is building a united rare disease community with patient groups at its heart. Beacon envisions a world in which no one faces their rare journey alone. The charity firmly believes that patient groups have the power, knowledge and determination to change the future of rare disease. Beacon upskills these groups through trainings, guided programmes, community projects and research initiatives to help them make a maximum impact when engaging in research and advocacy projects with the wider rare community. Beacon is a guiding light for all those living with a rare disease.

Cure SMA leads the way to a world without spinal muscular atrophy (SMA), the number one genetic cause of death for infants. Cure SMA funds and directs comprehensive research that drives breakthroughs in treatment and care, and we provide individuals with SMA and their families the support they need for today. A few programs that we’ve put into action for the SMA community include our Summits of Strength, virtual support series, and community support packages. Their Research, Clinical Care, Family Support and Advocacy teams actively work with key partners, including individuals with SMA, family advocates and pharmaceutical companies to advance early detection and treatment of SMA, fund new research and treatments, and provide families with the support, care, and equipment they need.